Spina Bifida Myelomeningocele

She must have missed the memo.....

..the one that told her she needs to be careful....

...the one that labels her 'Myelomeningocele' girl

....the one the reminding her that she was born with her spinal cord outside her body

...that she has real nerve damage and baffles our Spina Bifida doctors

I guess today she forgot her limitations...

...we'll read 'that' memo another day ~ or not

Tantrum

 

He is my Joy....

 

 

...most days

 

Everyone knows tantrums are normal.....

 

...but tantrums of children with so much hurt and anger inside

 

are a whole other 'type' of tantrum

 

Raging, ear piercing shrill screams, roaring

 

when they feel out of control and powerless

 

We've got the scars on our arms, legs and face to testify

 

....but today we celebrate that they are shorter...and less violent

 

... still shockingly loud, and still draw confused glares from uninformed strangers....

 

But we have HOPE because we've witnessed one dramatically healed child ~ who used to rage without self control

 

We can wait and we can pray...

 

Because we are FAMILY and we're not going anywhere....



...eat your heart out Martha Stewart

 

Who doesn't love RiceKrispies squares....

 

I realized Lukai hadn't eaten them before....

 

....let alone make them!

 

Everyone just has to help.....

 

ooey gooey goodness...

 

Love how easy it is to 'wow' the littles....

 

They think I'm beter then Martha Stewart!

 

*must* get hands right in there....

 

Mabie not as picturesque as Martha's...but I guarantee ya ~ they taste beter then hers!

The Game of Sorry ~

A great test of the kid's character....

is how they play the game of Sorry.

Nothing test's ones self-control better...

then being sent back to 'Home'

As the littlest of the Littles dozes off...

....and you've been sent back to 'Home'

for the upteenth time....

Losing to little Sisters is hard to swallow....

...but it ends with high 5's and smiles!

Hard to begrudge the winner when she's this cute :)

The art of S'mores....

 There is an art....

 

...to the perfect s'more

 

Found a new chocolate covered Oatmeal Cookie

 

 

it held up great under the pressure....

 

 

Melty 'mellows, hot chocolate and the crunch of the Oatmeal

 

 

Heavenly

 

"Bring up a child in the way they should go.....

 

and they will not depart from it...."

 

 

I think that applies here ;)

 

*must open wider*

 

 

 

Role Model.....

 

He didn't come in and asking for money.....

 

 

there was no, "Can I have a raise in my allowance....

 

 

 ...just a simple question....

 

"Is there anything I can do.....

 

 

...to earn some money?"

 

*Earn some money*

 

No 'hand out' for this young man.....

 

 What a great example, for all the 'little eyes' that look up to him.